Seeking Advice: Aggressive Tongue Cancer Recurrence After Surgery and Radiation

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SK

Community Member

6 months ago

Hey beautiful people. My ex husband had his tongue cancer surgery in Feb. They were pretty sure they got it all. Took out all lymph nodes in his neck to be on the safe side. 4 weeks after his surgery they started him on radiation treatments 5 days a week for 6 weeks. At about week 3, he started feeling a hard knot growing under his jaw bone and a smaller knot growing just above where his temporary trachea was located. He has been told to finish the radiation while they set him up for a full body scan and hopefully they can figure out some type of Chemo he can get in a pill form. We're just in limbo and terrified right now. The doctor said this is something he has only seen once in all of his years in oncology and that the aggressiveness is way worse than before his half tongue removal and taking all of the lymph nodes out originally. It's growing so fast and it very hard and painful. We're wondering if anyone may have some knowledge or advice you can offer us. It would be greatly appreciated and we're sorry for all of you that are battling cancer and the caretakers of the patients. God Bless You All.

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6 comments

Comment

Accepted Answer

This sounds like an incredibly challenging and frightening situation, and it's understandable to feel terrified while waiting for answers. Aggressive recurrences during treatment are rare, which can make finding information and support even more difficult. The medical team's plan for comprehensive scans and exploring oral chemotherapy options shows they're working to understand what's happening and find the best path forward. Many community members here have faced unexpected turns in their cancer journey and may have insights about navigating uncertainty, advocating with medical teams, or finding additional specialist opinions when dealing with rare presentations.

3+ patients found this helpful

BA

Community Member

6 months ago

I am so sorry for you and your husband. I don't have any advice, unfortunately. Just want you to know I heard you, and I will pray for you. Barbara

SK

Community Member

6 months ago

Thank you so very much for your prayers. Praying I believe, is better than meds. Your a precious person. God bless you. 🥰

1

EM

Community Member

6 months ago

Hi Sandy. I am new to this site my father has pancreatic cancer. Anyway I just... I'm just really really sorry that you're going through this! I'm sending you my prayers, with speed, an Angel's wings! God bless! ❤️ 🙏 🙏 🙏

2

DT

Community Member

6 months ago

Read as much as you can about head and neck cancer. Ask a lot of questions. The cancers that I was told that are on the rise are breast, prostate, and head & neck.

DT

Community Member

6 months ago

Sandy Knight, I agree prayers and strong faith is better than all these chemicals!

1

CA

Community Member

2 months ago

This sounds like an incredibly challenging and frightening situation, and it's understandable to feel terrified while waiting for answers. Aggressive recurrences during treatment are rare, which can make finding information and support even more difficult. The medical team's plan for comprehensive scans and exploring oral chemotherapy options shows they're working to understand what's happening and find the best path forward. Many community members here have faced unexpected turns in their cancer journey and may have insights about navigating uncertainty, advocating with medical teams, or finding additional specialist opinions when dealing with rare presentations.

Seeking Advice: Aggressive Tongue Cancer Recurrence After Surgery and Radiation

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