Community Member
16 days agoI was diagnosed with Uveal Melanoma in 2017 in my left eye. I had plaque radiation therapy, and was able to keep my eye and some semblance of vision. I was told that the tumor was class 1A with the least possible chance of the cancer spreading. I kept up with my quarterly CT’s and ultrasounds. In August 2021, I was told the cancer had spread to my liver. I met with the local oncologist immediately and was given the life expectancy statistics that no one ever wants to hear. There were not very many options for treatment back then, I traveled to Iowa for a clinical trial of Tebentafusp and Nivolumab until it became available in my city. Once tumors started to grow, I was back to Iowa in January 2023 for another trial. After nine months, it was determined that it was not working, so I ended up back home with a new oncologist. Since then, I have been receiving immunoembolizations every month which, for the most part have kept things stable. I do have a couple of lesions in my lungs, which haven’t grown, and a new bugger in my spine, which we will radiate. I guess my point is that I have far outlived any stupid life expectancy statistics, and it seems as if there are new treatments available to us all the time! Hang in there my people.
Community Member
16 days agoThank you for sharing such an inspiring and hopeful message with the community. Living beyond statistical expectations while actively pursuing new treatments shows incredible strength and demonstrates how individual journeys can differ significantly from general statistics. Your experience with various treatment approaches and maintaining stability through immunoembolizations offers valuable hope to others facing similar challenges, and the reminder about emerging treatment options is especially encouraging for fellow patients navigating this diagnosis.
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