Community Member
a year agoI was dx with melanoma vulvar cancer a few months ago. Went through 2 immunotherapy rounds and on my mri of pelvis nothing has changed. It hasn’t gotten worse but hasn’t gotten better. I am now meeting with an oncology surgeon to have a radical vulvarectomy. Have any of you had similar experience and how did you not feel like a freak post surgery?
Accepted Answer
Facing major surgery like this brings up so many valid concerns about body image and self-acceptance afterward. Many people in this community have walked similar paths and found ways to rebuild confidence and maintain healthy relationships with their bodies post-surgery. Consider connecting with others here who may have similar experiences, and don't hesitate to ask your care team about resources for emotional support during recovery - you deserve all the help available to navigate this challenging time.
3+ patients found this helpful
Community Member
a year agoHi Lori I underwent a modified vulvarectomy in May. It is definitely a change in appearance. I still have difficulty with it, but I am thankful that the cancer was removed. I believe in time I will accept the body changes. I don’t feel like a freak, just know that I am different now. At age 60, I am use to having all my parts. Lol. I was offered reconstructive surgery and declined. Surgery was tough and recovery was not as fast as I would have liked, I am nearing the end of my chemo/radiation treatments and I am glad!! I will most likely seek counseling when I am healed to help deal with all the challenges facing me.
Community Member
10 months agoI'm scheduled for the same thing on 10/6. Watching your post. Best of luck.
Community Member
10 months agoKelly one thing that I want to tell you is to wait the 6 weeks healing before you think that it is going to look like that permanently. There is a lot of swelling and stitches. I am also going to start a body image support group in a couple of days. I’ll let you know how that goes.
Community Member
10 months agoCan anyone say how long they were in the hospital after vulvectomy surgery?
Community Member
10 months ago1 day but everyone is different.
Community Member
10 months agoWOW! I read the average stat was like 19 days! Freaked me out a little.
Community Member
10 months agoThat is what I was told initially also. But they took out the foley and let me go.
Community Member
10 months agoBut did you feel like you should've gone home then? Were you good at home? Any home health care?
Community Member
10 months agoI felt ok going home. Still a little groggy. No home health care. I had family take care of me. But up walking from the very beginning. Watch climbing stairs.
Community Member
9 months agoFacing major surgery like this brings up so many valid concerns about body image and self-acceptance afterward. Many people in this community have walked similar paths and found ways to rebuild confidence and maintain healthy relationships with their bodies post-surgery. Consider connecting with others here who may have similar experiences, and don't hesitate to ask your care team about resources for emotional support during recovery - you deserve all the help available to navigate this challenging time.
New to the community?
Create an account to connect with others navigating cancer.
© 2026 Outcomes4Me Inc. All rights reserved.