What's the difference between WM and LPL in blood cancers?

Thank you for sharing such helpful information about the relationship between WM and LPL - this distinction can be confusing for many people in the community. Your decade of experience navigating treatment changes and clinical trials demonstrates real resilience, and sharing this knowledge helps others who may be facing similar questions about their diagnosis. Clinical trials can offer hope when standard treatments aren't working as effectively, and your willingness to participate in research may help future patients too.

What is lol

They will not give me chemo. Just found out I had it for two years. But they are giving me pill BRUKINSA I am so new at this will welcome all information anyone had. I am in DelRay Beach Florida. Soo glad I found this group

Sorry I had so error. What is LPL?

I am new to Brukinsa and getting used to side effects especially constant sweating! Any suggestions for medications ?

Have been taking brukinsa for almost 4 years. Had 4 course of rituximab the first year. Not many issues other than some nausea and tiredness

Sweating is a major problem for me. However, I am looking for a solution! Suggestions

I have had Waldenstroms for approximately 3yrs. I’m on Brukinsa along with many high quality over the counter vitamins. I see my oncologist every 2 months for extensive blood tests. I am constantly seeing a slow regression of the IGM score with no side effects. Hope and pray the success of Brukinsa continues. My hope for each of you is a very successful health journey.

What vitamins are you taking?

Hi all, I’ve had WM for about 18 years with Rituxan infusions. This past year my doctor prescribed Brukinsa but had lots of “phantom” sweating 24/7. Recently I was switched to Japirca and sweating moderately went down but still feeling the sweating! See my doctor about every 2-3 months and monthly blood tests. Glad I had a port inserted several years ago. This makes the blood draws more convenient for this 84 year old! Hang in there everyone!!🙏😅

Anonymous.. I only last year started with the sweating issue, but only problematic in summer. I had ongoing issues with needing a fan constantly, particularly at night even with central air. After many hours of research and discussions with the international waldenstroms group, apparently body temp regulation is a complaint for MANY WM patients. During periods when I turn into a major arm and face faucet problems I've been prescribed Qbrexza wipes. They need pre-authorization but work wonders. The under arms gave off an order that can't be covered lol. There was not one deodorant of any price that worked from anywhere.