When diagnosed with metastatic triple-negative breast cancer (mTNBC), you face not only physical challenges but also significant mental and emotional side effects. These “unseen” effects can be profound, particularly as you deal with mortality and the poor prognosis associated with mTNBC. These can include emotional distress and anxiety due to the poor prognosis, an increased risk of depression, and feelings of social isolation. Cognitive and personality changes may occur, particularly if brain metastases develop, leading to additional emotional burdens. Patients may also grapple with existential concerns about life and death, which can be distressing. Fatigue from treatment can further impact mental health.
Coping strategies
Engaging a death doula can provide invaluable support in navigating end-of-life decisions, offering a compassionate presence and helping to create a meaningful legacy. Practicing mindfulness and meditation can foster acceptance and reduce anxiety, allowing patients to live more fully in the present moment. Open communication with loved ones about wishes, fears, and feelings can strengthen relationships and provide emotional relief. Additionally, participating in activities that bring joy and fulfillment, whether through art, music, or nature, can enhance quality of life.
It’s important to release guilt and shame by understanding that cancer is not a consequence of personal failure. Engaging in therapy or counseling provides a safe space to address and process these emotions, allowing patients to develop healthier perspectives and make informed decisions about their end-of-life care. Practicing self-compassion through journaling positive affirmations and reflecting on personal strengths can empower patients to embrace their journey. Mindfulness and meditation can help manage anger and stress, promoting acceptance and peace. Additionally, support groups offer connection and reassurance, reminding individuals they are not alone. By embracing these strategies, you can alleviate emotional burdens and focus on creating a meaningful and peaceful end-of-life experience.
Prioritizing overall wellbeing
The expected lifespan after a diagnosis of metastatic triple-negative breast cancer (mTNBC) is 13.3 months. While remedies such as mind-body therapies, exercise, and dietary changes can contribute to overall well-being, suggesting that these alone could significantly alter the prognosis may fall into “toxic positivity” and is not always helpful. Instead, it’s crucial to focus on what brings you peace and comfort. Mind-body therapies like meditation and yoga can help manage stress, while regular exercise may improve mood and physical health. It’s also important to learn to lean on loved ones for emotional support, as maintaining strong connections can provide comfort and reduce feelings of isolation during this challenging time.
Resources to support patients and loved ones
Camp Kesem is a national organization that provides free, week-long overnight summer camps for children ages 6 to 18 who are coping with a parent’s cancer. Founded at Stanford University in 2000, Camp Kesem has expanded to over 130 chapters across the United States. The camp offers a supportive environment where children can participate in traditional camp activities, build friendships, and share their experiences with peers facing similar challenges. The program aims to help children escape the stress of their parent’s illness, at least temporarily and fosters a sense of community and support.
There are various support groups and resources available for caregivers and family members, including spouses at most cancer centers. These groups provide emotional support, practical advice, and a community of individuals who understand the unique challenges of caring for a loved one with cancer. Engaging in these support networks can help caregivers manage stress, share their experiences, and receive guidance on navigating the complexities of caregiving. It’s important for caregivers to seek out these resources to ensure they have the support they need while caring for their loved ones.
Navigating mTNBC is difficult, and we want to help. Send us a message in the app via Ask Outcomes4Me and a member of our oncology nurse practitioner team will respond.
