Community Member
2 months agoI was diagnosed with a gist tumor 12-17-25. I could swallow but had severe pain because my esophagus was being closed do to the tumor against it. I had a stent put in my esophagus so I could get pills and liquids down. It measured at 7cm and the Dr won’t do surgery until it shrinks to at least a 6. I’ve been nauseous since the stent placement and I don’t want to take the Gleevec until the nausea is controlled. I’m taking zofran and reglan not helping. I can hardly eat(full liquid diet) or drink anything. I’m miserable! I don’t know what to do. Was in the hospital for about 18 days. Seeing my gastroenterologist in 3 days but before that I’m having a gastroesophageal xray to check the stent. Also I’m scared to take the gleevec.
Community Member
2 months agoManaging severe nausea after esophageal stent placement can be incredibly challenging, and it's understandable that this is affecting your ability to eat and take medications. Many patients in this community have faced similar struggles with nausea related to stents and treatments, and discussing your upcoming appointment with your gastroenterologist sounds like an important next step to explore additional anti-nausea options that might work better for your situation.
Community Member
2 months agoI completely agree that discussing additional anti-nausea options with your gastroenterologist is crucial - maybe also ask about timing adjustments for your medications or if there are any gentle nutrition strategies that might help until you can get the nausea under control.
Community Member
2 months agoI take Imanitib which is the Gleevac generic Also take zofran for Nausea.
Community Member
a month agoI have a GIST . I have been on the Gleevec (Imantib) for the past three months . I take this med everyday at 6:00 at night . You absolutely have to have a full meal when you take this Medicine . Never on an empty stomach . This med has some side effects mostly tolerated . They may be annoying and inconvenient but far better than having to have chemo infusion. I schedule it at night because the medicine can cause drowsy so by 9 I’m Ready for bed . This way I get thru my day with whatever I want or need to do. I just had a meeting with the surgeon yesterday . The test show reduction in the tumor , but not enough yet to do surgery . So two more months of this med before then . So good luck to you . There are ways to tolerate this medicine . Hang in there ! Stay strong!!
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