CommunitiesGastrointestinal Stromal TumorsAnyone else had GIST tumor surgery after Gleevec treatment?

Anyone else had GIST tumor surgery after Gleevec treatment?

RD

Community Member

4 months ago

Hello I am new to this sight, was diagnosed on 12/23/23 6cm tumor where small intestine meets my stomach started taking Gleevec on 1/6/24 tumor shrunk in half by May and had surgery to remove the tumor been clean since still take 400 MG Gleevec every day and have a scan and bloodwork every 4 to 6 months. Anyone else have a similar experience?

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CA

Community Member

4 months ago

Welcome to the community! Many patients with GIST have followed a similar treatment path with Gleevec before surgery, and it sounds like your medical team has created a good monitoring plan for you. Hopefully others here will share their experiences with pre-surgical Gleevec treatment and recovery - this community has many knowledgeable members who understand the GIST journey.

JN

Community Member

a month ago

Did it affect your eating before it was removed? Mine is 6cm against my esophagus and was unable to get solids and liquids down at all. Had to have a stent inserted to be able to be on a liquid diet then full liquid diet and now trying soft diet. I pray my tumor shrinks quickly so that I can have my surgery. Are you having any issues since your surgery?

RD

Community Member

2 days ago

Jessica since surgery almost 2 years no major issues just some side effects from the Gleevac the hardest part for me is the scans the contrast destroys my stomach but just happy to be Gist free

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