CommunitiesHER2+Does TDM1 infusion cause joint pain and shoulder pain as side effects?

Does TDM1 infusion cause joint pain and shoulder pain as side effects?

RS

Community Member

25 days ago

Anyone who’s had TDM1 infusion have side effects such as join pains ? Initially my left shoulder started to hurt the are that was irradiated, and the pain is now all on the right shoulder along with pain in the feet (peripheral neuropathy) but milder.. my Oncologist suggested to take Tylenol or Ibuprofen as needed..any thoughts?

8 comments
Comment
CA

Community Member

24 days ago

Joint and shoulder pain can indeed be side effects of TDM1 treatment, and these symptoms are experienced by some patients receiving this therapy. It's encouraging that your oncologist has provided guidance on managing the pain with over-the-counter options, and many in the community find it helpful to share their experiences with managing treatment-related discomfort and what strategies have worked for them.

DT

Community Member

22 days ago

I was told to take Claritin and I do exercises for my shoulders and arms. I started with a physical therapist before my surgery and continue to do them. Really helps. I do them daily no matter how crappy I feel. I think it has helped my shoulder not seize up. Gabapentin works for the neuropathy. Ask your dr. It’s worth it!

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RS

Community Member

21 days ago

Thanks Denise, yes I did take Gabapentin during my neo adjuvant therapy and I am doing physio as well - btw, is the Claritin for excessive tears! I know they call it dry eye -

DT

Community Member

21 days ago

It’s for the joint pain. Don’t ask me why but it works! I use regular visible red eye solution for my weepy eyes. Two or sometimes three times a day. It’s a miracle. Good luck.

1
DT

Community Member

21 days ago

Visine

KL

Community Member

9 days ago

I have joint pain from my blocker. I’m taking 2 Tumeric tablets and 1 Tripplet Joint that I get from Costco and I’m not in pain at all when I take it which is 99% of the time. 1% pain because I have run out

KL

Community Member

9 days ago

Gabapentin is a god saver

BH

Community Member

15 hours ago

Bioastin helps tremendously with joint pain for me- 12mg daily.

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