Communities›In Treatment For Non-Small Cell Lung Cancer›How do I move forward after EGFR+ NSCLC progression?

How do I move forward after EGFR+ NSCLC progression?

MC

Community Member

a month ago

Just learned that after 20+ months of stability on pemetrexed and amivantamab, the [I refuse to say my] EGFR+ NSCLC has progressed. I read that it is inevitable that this cancer will develop resistance. Will meet with oncologist next week. Tumor burden is still pretty low although first disease outside of thorax documented. I'm OK, but not great. And blessed/glad this is now and not 10 years ago when treatment options were many fewer. But, damn anyway.

3 comments
Comment
CA

Community Member

a month ago

Disease progression after a period of stability can feel overwhelming, even when treatment options remain available. Meeting with the oncologist next week will provide important information about potential next steps and treatment strategies that may be suitable for this situation. The community here understands the complex emotions that come with cancer progression, and many members have navigated similar treatment decisions and can offer valuable support and insights from their experiences.

JO

Community Member

11 days ago

How are you doing now? What did the doctor tell you?

MC

Community Member

11 days ago

Back on carboplatin with the amivantamab and pemetrexed for 3 rounds, then recheck CT. But first round of carbo dropped my platelets so chemo put off a week---first time that has happened. Had a CT guided biopsy of a lung nodule, but no cancer cells, so no updated markers [rats]. But may try again. After 2 years of stability, I get it intellectually, but it is harder emotionally than I anticipated. Thanks for asking.

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