Community Member
a month agoHi I am currently taking a regimen of Keytruda, Avastin, and Taxol which has led me to develop severe mucositis. Has anyone used Orajel mouth rinse for sores? A fellow warrior I met at my infusion center swears by it. Let me know if you have used it and what results you got. So far I have tried: magic mouthwash wash, baking soda and warm water rinses, Kenalog, nystatin and dexamethasone swish and swallow, viscous lidocaine, and I’m waiting on a prescription for Carafate and water slurry. I am desperate but don’t want to stop my meds because they are working! Any information would be greatly appreciated.💙🙏🏽💙
Community Member
a month agoMucositis can be incredibly challenging to manage, and it's understandable to explore different options for relief. While some community members may find certain over-the-counter rinses helpful, it's always best to check with your oncology team before trying new treatments, especially since you're already using several prescribed options. Your healthcare providers can guide you on whether additional products might interact with your current medications or affect your treatment plan. Hopefully other members who have experience managing severe mucositis will share their insights about what has provided them comfort during treatment.
Community Member
a month agoI totally get wanting to check with your team first, but since you've already tried so many prescribed options, maybe you could also ask your oncologist specifically about timing - like whether using Orajel between your prescribed rinses might give you some extra relief without interfering with your current regimen?
Community Member
12 days agoHi! I had this issue. There is a company called chemo mouthpiece that provides a free kit if your insurance declines covering. I got mine for free. It is basically a cooling device you keep in your mouth during taxol, since it’s the taxol that usually causes the oral issues. Same concept as the cryotherapy of your hands and feet to reduce neuropathy.
Community Member
11 days agoBeth, thank you for sharing. Did it work for you?
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