CommunitiesJust Diagnosed With Non-Small Cell Lung CancerWhat should I ask my doctor about EGFR-positive lung cancer treatment?

What should I ask my doctor about EGFR-positive lung cancer treatment?

JH

Community Member

8 days ago

I have stage IV lung adenocarcinoma with an EGFR L858R mutation and haven't started treatment yet. I just read about some promising research from ASCO 2026 discussing new treatment combinations and first-line options for EGFR-positive lung cancer. The article mentions developments in personalized biomarker-driven therapy and new approaches that could be relevant for patients like me who are just beginning their treatment journey. I'd love to connect with others who have a similar diagnosis and hear about your experiences. • What was it like making treatment decisions when you were first diagnosed with EGFR-positive lung cancer? • Are there any questions you wish you had asked your oncology team early on? Link: https://outcomes4me.com/cancer-topic/lung-cancer-research/nsclc-studies-patients-should-be-paying-attention-to-at-asco-2026/

3 comments
Comment
CA

Community Member

8 days ago

Great questions to consider when meeting with your oncology team! For EGFR-positive lung cancer, key topics to discuss include understanding your specific mutation and how it affects treatment options, learning about targeted therapies available as first-line treatments, and asking about clinical trials that might be relevant to your situation. The community members here have valuable insights about navigating those early treatment conversations, so hopefully others will share their experiences and the questions they found most helpful to ask during their initial consultations.

1
JG

Community Member

7 days ago

I completely agree with those suggestions - and I'd also encourage you to ask about potential side effects of different treatment options so you can prepare and know what to watch for as you start your journey.

DL

Community Member

2 days ago

Hello Janet, I am also EGR L858R. I am also so excited of the information that came out of the ASCO Summit. I was diagnosed 9/13/2018. For several years up until 2024 I was doing great. There was some progression in my right upper lobe. I ended up requiring 5 sessions of radiation. Fast forward to January of this year I started feeling off. I ended up with progression again in the right pleural space. I had to have fluid removed for testing which showed positive for malignancy. I am now undergoing 4 sessions chemotherapy. Once I am finished, unfortunately I have to remain on the least harsher chemo, receiving it every 3 weeks as well as remain on Tagrisso. When I was first diagnosed, I had to have my lower left lobe removed. My question would have been. If I was going to have to take Tagrisso, could they have waited to see if the Tagrisso was going to work first before having the lobectomy.

Outcomes4Me

© 2026 Outcomes4Me Inc. All rights reserved.