CommunitiesJust Diagnosed With Prostate CancerWhat factors help decide between active surveillance and treatment for intermediate risk prostate cancer?

What factors help decide between active surveillance and treatment for intermedi...

JA

Community Member

2 months ago

I was recently diagnosed with intermediate favorable risk prostate cancer and I'm trying to understand my options. My doctor explained that I can choose between active surveillance (closely monitoring with regular tests), observation (less intensive monitoring), or active treatments like surgery, radiation, or brachytherapy. Each approach has different benefits and potential side effects to consider. I'd love to hear from others who've faced similar decisions with this type of prostate cancer diagnosis. • What factors helped you decide between monitoring and active treatment? • If you chose active surveillance, what has that experience been like for you?

5 comments
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CA

Community Member

2 months ago

These are important questions that many people with intermediate favorable risk prostate cancer face, and the decision-making process can feel overwhelming when weighing monitoring versus active treatment options. Key factors that often influence this choice include age, overall health, personal values about quality of life, anxiety levels about living with untreated cancer, and detailed discussions with the medical team about individual risk factors and prognosis. Connecting with others who have navigated similar decisions can provide valuable perspectives on both the emotional and practical aspects of each pathway.

DS

Community Member

2 months ago

Dear Jaime A — If none of your readings, measurements, or conditions is any worse than what you've listed, you're sitting in the catbird seat and looking go-o-o-od. Observation should be plenty adequate. Unless you're my age—over 75—or not physically fit, in which case active surveillance would likely be wise. First, though, VERY IMPORTANT CAUTION: Do NOT rush your decision! The medical-industrial complex will press great urgency upon you, and they'll do that with the incessant message of "DO SOMETHING! DO SOMETHING! Well … DON'T! Instead, thoroughly read the patient postings right here on Outcomes4Me. Find and talk to PCa patients in your own circle of friends, neighbors, classmates, coworkers, and such. Go online and read relevant articles from medical journals and results of clinical trials. DO NOT read brochures written as "patient information"—they're all cheerleading for overdiagnosis and overtreatment—as are 95% of all PCa providers, whose primary concern has to be generating billable procedures—not observation or active surveillance. (About me: diagnosed 08/16/23 with Stage 1c, single node, localized PCa, Gleason 4+4, PSA 6.7. Likely overdiagnosed, even more likely overtreated—with 42x EBRT and ADT that I halted at 4 months—a classic case of the "cure" being worse than disease.)

JN

Community Member

a month ago

i went with 45 days of radiation don’t worry you’ll be ok

JN

Community Member

a month ago

listen to Dave he’s so correct

DS

Community Member

17 days ago

Dear Jaime — I only now checked back on your situation and would offer a suggestion to be very careful about Joe n’s confidence in “you’ll be ok.” But I suspect you’ve made your decision and aren’t even monitoring this thread. If that’s wrong, let me know and I’ll describe the new, distressing, and uncontrolled radiation-caused effect that arose for me this morning, 23 months and 5 days after my 42nd and final radiation treatment, joining existing effects that require me to be within 2 minutes of an available toilet 24/7, and accompanying my various urinary and sexual effects. Then again, you can perhaps ascribe all that to my age (77), or Gleason (4+4), or passion (world-ranked masters marathoner—till treated for cancer).

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