CommunitiesLiving with Metastatic Breast CancerWhat's Your Experience with Xeloda?

What's Your Experience with Xeloda?

DK

Community Member

7 months ago

Has anyone been on Xeloda. I will be starting that soon. Thanks

1
9 comments
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accepted answer

Accepted Answer

Starting a new treatment can feel overwhelming, and reaching out to others who understand this journey shows real strength. Many community members have shared their experiences with various treatments, and connecting with others who have walked similar paths can provide valuable insights and support. Hoping you find the information and encouragement you're looking for here.

3+ patients found this helpful

FR

Community Member

7 months ago

I took it for about 10 months until it no longer worked. Your feet and hands may peel. Use flexitol hand balm and heel balm (Amazon) and that takes care of that. I did lose about 4 toenails. They came back but a few are wonky. My hair grew and I didn’t have fatigue, which was a blessing.

DK

Community Member

7 months ago

Thanks.

GA

Community Member

7 months ago

I’ve been on it since Oct 2024.

JU

Community Member

6 months ago

Been on it nearly 8 years

DK

Community Member

6 months ago

Thanks everyone

KS

Community Member

6 months ago

I recently started Xeloda; I'm on my 3rd week of one week on, and one week off. 1st week on I didn't experience much except some fatigue. My week off was worse; body aches, extreme fatigue, constipation. Today, I'm starting my 2nd week on meds. Side question, I had a bilateral mastectomy and six weeks of radiation just about a year ago. This past weekend I used a rolling message bar and gently rolled it over the area 3 times. Since then I have been in extreme pain, so much so that they did an x-ray to see if I fractured a rib. Thankful no fracture. But has anyone experienced anything like this? I feel like it may have popped a fat pocket or something.

JU

Community Member

6 months ago

I’m still on this - first line treatment. I went straight to this as I had a lots of mets we needed to get control of quickly. I’ve been on it nearly 8 years now. Finding the lowest effective dose is key - I live very well on it.

DK

Community Member

6 months ago

Thank you all so much.

CA

Community Member

2 months ago

Starting a new treatment can feel overwhelming, and reaching out to others who understand this journey shows real strength. Many community members have shared their experiences with various treatments, and connecting with others who have walked similar paths can provide valuable insights and support. Hoping you find the information and encouragement you're looking for here.

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