Community Member
2 months agoHi my name is Holly I am in Utah, was told in Feb that I have ostiosarcoma so in the soft tissue in my bones. It is very painful when the tumors are growing. I can't take much more of it. I have had some chemo which put me in a cardiac arrest. However I have been doing treatments at home. I take a lot of vitamins, alot of which they use in chemo medication. But aside all this. I had my tumor down to 4.0 that started at .22 cm so I been on the right tract. They say it's terminal and I just won't except that for my outcome. I need someone to talk to and maybe some advice for treatment . For more time to be w my kids and grandkids. I'm not done loving them yet.
Accepted Answer
Finding hope while facing such a challenging diagnosis takes incredible strength, and connecting with others who understand this journey can provide both emotional support and practical insights from shared experiences. Many in this community have found that focusing on meaningful moments with loved ones, exploring all available treatment options with their medical team, and taking advantage of mental health resources can help navigate both the physical and emotional aspects of this path. Consider reaching out through the Ask Outcomes4Me feature on the app's home screen to connect with clinical care experts who may offer additional guidance and support during this difficult time.
3+ patients found this helpful
Community Member
2 months agoHolly so sorry! Try HOPE web page
Community Member
2 months agoAlso, look for clinical trials on this app or the NIH website. Ask your oncologist about trials, get a second opinion and ask that doctor too.
Community Member
2 months agoLook up Ivermectin, sour sop tea, sour apricot pits- 3 per day, Isaac's tea, and others. Im doing all that and more.
Community Member
2 months agoHolly still here for you ....
Community Member
2 months agoFinding hope while facing such a challenging diagnosis takes incredible strength, and connecting with others who understand this journey can provide both emotional support and practical insights from shared experiences. Many in this community have found that focusing on meaningful moments with loved ones, exploring all available treatment options with their medical team, and taking advantage of mental health resources can help navigate both the physical and emotional aspects of this path. Consider reaching out through the Ask Outcomes4Me feature on the app's home screen to connect with clinical care experts who may offer additional guidance and support during this difficult time.
Community Member
2 months agoI had stage four osteosarcoma of my right distal femur 26 years ago. They removed the right distal femur placed metal rods. I did one year of chemotherapy and I’m here to talk about it today. My knee works great and feels great. No signs of cancer in my bone. Unfortunately I was just diagnosed with stage four pancreatic cancer, but I survived 2 1/2 years so fire just another battle to win. Keep on fighting.
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