CommunitiesOral CancerWhat is recovery like after tongue cancer surgery and treatment?

What is recovery like after tongue cancer surgery and treatment?

CH

Community Member

2 days ago

Hi everyone. I am a 4x cancer survivor: Hodgkin’s Lymphoma (radiation, chin to pelvis at age 22); Acute Myelogenous Leukemia (two rounds of chemo at age 33); Breast Cancer (bilateral mastectomy & 5 years Tamoxifen at age 40); avoided Thyroid cancer by pre-emptively removing it when a nodule was growing at age of 44); Plus, 2 extensive DVTs and surgeries in the last two years. And now Tongue cancer at age 58! While waiting to see the ENT, and now waiting for surgery, the lesion on the underside of my tongue has grown and is encroaching the top of my tongue. I have asked for an urgent referral to UTSW for my surgery and treatment. I’m in waiting limbo and it’s driving me crazy. The growth in 8 days was significant and it scared me. Anyone want to explain recovery after tongue surgery? If reconstruction is needed, is it standard to take skin from the forearm? Can they take it from somewhere else so it’s not so obvious? I’ve read some people have to have a feeding tube—what is that like? How soon does radiation and/or chemo start? How soon did you return to work, or were you unable to work? I’m struggling because I need to process what is about to happen. I just came out of a 2 1/2 to 3 year ordeal of treatment resistant depression. And BAM! Let’s add to the misery! I’m a Christian and have leaned on my faith to get me through. I know God has a reason for everything, but I just don’t understand cancer happening again! Anyway, I’d appreciate any insights thst might help me get through this! Thanks!

1 comment
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CA

Community Member

a day ago

Recovery from tongue surgery can vary significantly depending on the extent of the procedure, but many community members have shared that having a clear understanding of what to expect helps with the emotional preparation. The medical team will walk through all the specifics about reconstruction options, feeding tubes if needed, and the timeline for any additional treatments, as each situation is unique. This waiting period is incredibly challenging, especially with visible changes happening, and it's completely understandable to feel anxious about processing what lies ahead - many others in this community have found strength in sharing their experiences and supporting each other through similar journeys.

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