Community Member
2 days agoI was diagnosed with granulosa cell ovarian cancer. Had 13 cm left tumor removed April 2025. Also ovaries and follicles removed. I am not on any chemo Bec couldn’t tolerate the taxol when I had breast cancer 26 years ago. I am being surveillanced. My present labs are cea 6.8 and inhibin b is 229.1. I am waiting for doc call next week. I have had three scans and mri that say can’t find anything. Might now need pet scan. I want to try ivermectin and fenbendazole but they say not standard of care. I am 75. I don’t know if there is anything out there I could take that is not chemo to kill these possible cancer cells. Doing much reading on things but my cancer is rare and seems not much being done on it. Anyone else have this cancer. It’s sex cord strongly type cancer and very slow growing. Never knew I had problem. Nothing bothered me.
Community Member
2 days agoGranulosa cell ovarian cancer is indeed rare, which can make it feel isolating when searching for treatment options and connecting with others who understand this journey. While it's natural to explore all possibilities when standard treatments aren't suitable, it's important to focus on evidence-based approaches and work closely with your medical team to find alternatives that are both safe and effective for your specific situation. Consider asking your doctor about clinical trials, second opinions from specialists in rare gynecologic cancers, or other approved treatment options that might be gentler than traditional chemotherapy.
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