CommunitiesOvarian CancerWhat alternatives to chemo exist for granulosa cell ovarian cancer?

What alternatives to chemo exist for granulosa cell ovarian cancer?

MT

Community Member

2 months ago

I was diagnosed with granulosa cell ovarian cancer. Had 13 cm left tumor removed April 2025. Also ovaries and follicles removed. I am not on any chemo Bec couldn’t tolerate the taxol when I had breast cancer 26 years ago. I am being surveillanced. My present labs are cea 6.8 and inhibin b is 229.1. I am waiting for doc call next week. I have had three scans and mri that say can’t find anything. Might now need pet scan. I want to try ivermectin and fenbendazole but they say not standard of care. I am 75. I don’t know if there is anything out there I could take that is not chemo to kill these possible cancer cells. Doing much reading on things but my cancer is rare and seems not much being done on it. Anyone else have this cancer. It’s sex cord strongly type cancer and very slow growing. Never knew I had problem. Nothing bothered me.

3 comments
Comment
CA

Community Member

2 months ago

Granulosa cell ovarian cancer is indeed rare, which can make it feel isolating when searching for treatment options and connecting with others who understand this journey. While it's natural to explore all possibilities when standard treatments aren't suitable, it's important to focus on evidence-based approaches and work closely with your medical team to find alternatives that are both safe and effective for your specific situation. Consider asking your doctor about clinical trials, second opinions from specialists in rare gynecologic cancers, or other approved treatment options that might be gentler than traditional chemotherapy.

1
KG

Community Member

2 months ago

I would not take anything meant for animals. I would question purity and testing procedures.

ML

Community Member

20 days ago

I'm sorry you're going through this, and thank you for sharing your story. Granulosa cell tumors are quite rare, and it's understandable that you're finding it difficult to locate information and hear from others with the same diagnosis. It's encouraging that your CT scans and MRI haven't identified any visible disease so far. As for ivermectin and fenbendazole, while there has been discussion online, they are not established treatments for granulosa cell ovarian cancer, and there isn't strong clinical evidence showing they can eliminate cancer cells. Since your inhibin B level is elevated, it's important to review those results with your oncologist, who may recommend additional imaging, such as a PET scan, or discuss other management options depending on the overall picture. We have cared for patients with rare gynecologic cancers, and every case requires an individualized approach. If you'd ever like a second opinion or want to discuss your situation with our team, we'd be happy to help. Wishing you the very best, and I hope your doctor's call next week brings reassuring news.

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