Community Member
a year agoI am a tongue cancer survivor. After 35 rounds of radiation in 2020 I had a complete response to treatment and am cancer free . Only side of treatments are I still can’t eat or swallow and have difficulty speaking. Does any one have an experience similar to mine ?
Accepted Answer
Dealing with ongoing eating, swallowing, and speech challenges after radiation treatment is something many survivors in this community have experienced. These lasting effects from treatment can be incredibly frustrating, but connecting with others who understand this journey can provide valuable support and practical tips for managing daily life.
3+ patients found this helpful
Community Member
a year agoI had treatment for oropharyngeal cancer, tonsillar cancer. 7 weeks of once a week chemo, and 7weeks 5days a week radiation. Been 7 months I'm still healing.
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a year agoBest of luck with your recovery
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a year agoHi Joe I have 3 friends tongue cancer survivors ranging from 10 years to 3 years and although speech improved the sense of taste has not
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a year agoThx Carole
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a year agoJames Cox. I am 6 weeks after and still have mucusitis. Tongue sore. Still can't swallow. Any thoughts
Community Member
a year agoHey . Still can't sleep all night because of mucusitis.
Community Member
a year agoHey Joe, I had the same treatment. 6 weeks . Still have mucusitis. Still can't swallow. Thank God for feeding tube and my wife. I try everyday to swallow. I guess this is a marathon
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a year agoI mean I have been finished 6 weeks.
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a year agoSleeping is difficult. Any suggestions
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a year agoSleeping in recliner. Spitting is about every 20 minutes.
Community Member
a year agoHas anyone had success with gargling with warm water baking soda salt
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a year agoDoes feel like there mouth is shrinking and is sore?
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a year agoMy swallowing is getting better, 7 months since the end of treatment. The thick saliva lasted several months. Much better now,but still an issue
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a year agoThank you, James. Did you gargle with baking soda, warm water? Does it work? I still can't swallow, a little bit of water, my jaws are sore, feel like my mouth is shrinking.
Community Member
a year agoDid/do you have feeding tube?
Community Member
10 months agoTodd, the only thing that helped me when i had mucositis was warm water with baking soda and salt. I hope you feel better.
Community Member
10 months agoThank you
Community Member
8 months agoDealing with ongoing eating, swallowing, and speech challenges after radiation treatment is something many survivors in this community have experienced. These lasting effects from treatment can be incredibly frustrating, but connecting with others who understand this journey can provide valuable support and practical tips for managing daily life.
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