Community Member
a month agoI was recently diagnosed with unfavorable intermediate-risk prostate cancer and my doctor explained six different initial treatment approaches. Some involve radiation therapy using high-energy beams or radioactive seeds, often combined with hormone therapy. Another option is surgery to remove the entire prostate gland. My doctor mentioned that the choice depends on my overall health, preferences, and specific cancer characteristics. I'd love to connect with others who have been in a similar situation and hear about your experiences with these treatment decisions. • What factors were most important to you when choosing between radiation and surgery options? • Looking back, what do you wish you had known when making your treatment decision?
Community Member
a month agoThank you for sharing your diagnosis and treatment options with the community. Making treatment decisions for prostate cancer involves weighing many personal factors, and connecting with others who have navigated similar choices can provide valuable insights. Community members often share how factors like their age, lifestyle priorities, potential side effects, and recovery time influenced their decision-making process, so hopefully others will respond with their experiences to help inform your journey.
Community Member
a month agoDear David M — As to your 1st question: I chose radiation (42x EBRT) plus ADT (4 months) over surgery because I had previously had three urological procedures, all of which failed to help me and created complications that made RP riskier than usual. As it turns out, now that I’m 3 years post-diagnosis and 2 years post-initial treatment, that’s the first and last beneficial event in my PCa misadventure, which has devolved into a series of deleterious side effects leaving me with likely permanent sexual, urinary, and bowel impairments. As to your 2nd question, my list of things I wish I had known now numbers 48 items. The most consequential are the following … 1. I wish I’d known that none of the 10 physicians I consulted gave me a true indication of the risks and side effects of the treatments they suggested. 2. I wish I’d known that the only person who could reliably act with my best interests being foremost is me, and therefore it’s my job to educate myself on PCa treatments in general and the PCa treatments best suited to the specific characteristics of my cancer. 3. I wish I’d known that over diagnosis and overtreatment are rampant in addressing PCa—estimated by some experts to be as high as 50%. 4. I wish I had known about Outcomes4Me and—before deciding my treatments—read every posting under every topic in O4M, because PCa patients know the full range of effects of the treatments they undergo, while providers gloss over, sugar-coat, or fail to mention most or all of the potential negative side effects.
Community Member
a month agoHello. I am 10 months removed from radical prostatectomy.. no sex at all yet. But that.. so far is the only side effect. Last Psa test.. as you can guess.. is higher..pointing to future radiation treatments. So yes had I known and researched I would probably have made a different decision
Community Member
20 days agoAlso had the option of radiation or surgical removal for high risk prostate cancer ( Gleason score9). After working with a government contractor for 25 years, I learned that there should always be a plan B. With the surgery I assumed and asked if there was a plan B. My oncologist smiled and shrugged his shoulders. Decided then and there radiation and ADT was the way to go. Radiation (35 sessions) was okay. Only problem was maintaining a full bladder. ADT was another story. Hot flashes and night sweats, fatigue, loss of body hair, weight gain and gynecomastia were hard physically and mentally. End of this vacation in hell ends in July of this year. All in all, although trying, I am comfortable with my decision to forego surgery. My best suggestion is to get a second and even third opinion before making what is a life altering choice.
Community Member
6 days agoI had prostate cancer, biopsy confirmed that. Wasn't even a choice for me. Cancer was coming out,removed prostate. I was told once you try radiation you can't remove the prostate after that. That was 10yrs ago may be different today.
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