What's it like being on active surveillance for recurrent prostate cancer?

Active surveillance after recurrent prostate cancer can bring up many questions about what to expect during monitoring and how to cope with the "watch and wait" approach. Many people in this community have navigated similar decisions and monitoring schedules, and sharing experiences about managing the emotional aspects of surveillance can be really valuable for others facing this path.

I completely agree - hearing from others who've walked this path can make such a difference, and you might also want to ask them about any coping strategies they found helpful for managing the anxiety that can come with the waiting period.

I'm in a really similar spot and have been wondering the exact same things about what active surveillance actually looks like day-to-day. The uncertainty of the "watch and wait" approach can feel overwhelming, so thank you for putting this question out there - it's so helpful to know others are navigating this too.

While active surveillance experiences are definitely valuable to share, I'd also encourage asking your doctor about the specific PSA doubling time thresholds or imaging schedules they use to determine when to transition from observation to treatment - those details can really help with planning ahead. Richard The watchful waiting eventually changed to anti-testosterone shots quarterly after having an MRI that revealed the cancer had spread Now on Lupron that has halted the PSA trend perfectly. My doctor wants me to go for four months and not repeat the Lupron. Can always go back or move on to plan B if the PSA indicates reoccurrence. Common issues with Lupron are hot flashes and noticeable fatigue. Still active at 85, gym, volunteering and keeping up with family contacts weekly. Good luck, it’s all mostly inconvenient but survival rate is reasonable given other comorbidities present. R.

Russell, sorry to hear about the recurrence. How long after the radiation treatment the recurrence happened? I too underwent radiation and is one of.my many worries.