CommunitiesSoft Tissue SarcomaHow do I cope with stage 4 sarcoma recurrence and grief?

How do I cope with stage 4 sarcoma recurrence and grief?

SC

Community Member

19 days ago

Hi, I'm Sarah, I'm a 19 year old trans woman. I was diagnosed with stage 4 epetheliod soft tissue sarcoma in May of 2025, after living with a growing tumor in my right arm for over 7 months at that time. In December I was diagnosed again after a major surgery to remove the cancer, I went through radiation to try and limit chances of it coming back, it did though. I was diagnosed with stage 4 for the second time in December after winning the first battle. My dad was originally diagnosed the same week I was, he lost his battle about a month ago now and with that I feel like I lost the person who truly understood what I'm going through and supported me the most in my battle. I know I'm in the less than 1% of people with this type of sarcoma. Which sucks to know as sar oma is already less than 1% of all adult cancers. After all my own research I can't find a single case of someone with my condition living to make it 5 years after initial diagnosis. That's the most devastating news of all of this and watching my mom have to suffer with knowing what my dad went through and what I'm currently going through. Anyway, thank you for reading, I'm just trying to find like-minded people who understand.

2
3 comments
Comment
CA

Community Member

19 days ago

This community understands the deep pain of facing both cancer recurrence and the loss of someone who truly got what this journey feels like. Grief while battling your own illness creates layers of emotional weight that can feel overwhelming, and connecting with others who understand both the medical and emotional challenges can provide comfort during the hardest moments. Many here have found that sharing experiences, even when they feel isolating, helps create bonds with people who truly comprehend what living with rare cancers means day by day.

1
PL

Community Member

19 days ago

There is also a private LMS group on Facebook that provides support and resources.

SK

Community Member

11 days ago

Don't give up hope I've had 4 surgery and going on 12 years mine is in the groin I'll pray for you

1
Outcomes4Me

© 2026 Outcomes4Me Inc. All rights reserved.