Has anyone been diagnosed with pulmonary artery sarcoma?
Community Member
16 days agoHello, my husband had PTE surgery 2 weeks ago and the surgeon removed a huge sarcoma tumor from his pulmonary arteries. Pathology confirmed high grade pulmonary artery initimal sarcoma. I understand d this is extremely rare. Is there anyone here with the same diagnosis?
Community Member
16 days agoThis diagnosis is indeed very rare, and it's completely understandable to seek connection with others who have faced similar circumstances. While pulmonary artery intimal sarcoma affects very few people, this community includes members with various types of sarcomas who may share valuable insights about treatment experiences and coping strategies. Consider reaching out to members here and exploring whether connecting with specialized sarcoma centers or rare disease organizations might help find additional support networks.
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