What treatment options should I consider for widespread leiomyosarcoma at 44?
Community Member
20 hours agoI was recently diagnosed with high grad widespread non uterine Leiomyosarcoma. I started thinking had a pituitary tumor that they were unable to safely remove and pathology came back as LMS PET scan came back showing primary tumor was in thigh but I also have in other thigh, stomach, lungs, thyroid, back, several other soft tissue areas plus still brain tumor of course. Trying to figure out what I want to do treatment wise as my doctors have pretty much said I am palliative care at this point. I am 44 years old and this has been such a struggle to try to decide how aggressive/sick I want to be.
Community Member
15 hours agoThis diagnosis must feel overwhelming, especially when facing such difficult treatment decisions at a young age. Many people in this community have wrestled with similar choices about balancing quality of life with treatment intensity, and connecting with others who understand this journey can provide valuable perspective. Consider discussing all available options with your oncology team, including clinical trials that might be appropriate for your situation, and don't hesitate to seek a second opinion if it would help you feel more confident in your decision-making.
Community Member
12 hours agoWhile exploring all treatment options is definitely important, I'd also encourage you to ask your doctors specifically about your individual prognosis and what "palliative" means in your case. I’d also suggest finding a support group in your area where you can ask more specific questions from people who have been where you are or are in a similar situation. Sending positive energy to you. 🙏🏼❤️🙏🏼
New to the community?
Create an account to connect with others navigating cancer.
Related Questions
- Living with Leiomyosarcoma: Seeking Support During Treatment
- How do I fight leiomyosarcoma recurrence with natural methods?
- Has anyone tried cryoablation for leiomyosarcoma? Need experiences
- Anyone else tried Doxil and Yondelis for leiomyosarcoma? Scared of side effects
- How do others cope with round cell sarcoma?
- Is pinpoint radiation safe for inoperable soft tissue sarcoma?
- What treatment options should I consider for widespread leiomyosarcoma at 44?
- How do you cope with severe pain while waiting for sarcoma diagnosis?
© 2026 Outcomes4Me Inc. All rights reserved.