Community Member
a month agoMy cancer is extremely rare and there is no known treatment or cure. It is a salivary cancer that has metastasized to my lungs and liver. At its projected growth rate I have 1-2 years. My MSK oncologist is hoping to get me into a clinical trial … not curative but to hopefully inhibit the growth of the cancer. I would love to hear others experiences with clinical trials.
Community Member
a month agoClinical trials can offer hope when standard treatments aren't available, and many community members have found them to be meaningful experiences that provide access to promising new therapies while contributing to research that helps future patients. The medical teams running these trials typically provide very close monitoring and comprehensive care throughout the process, which many participants appreciate during their cancer journey.
Community Member
a month agoI’m so sorry you’re going through this incredibly challenging journey. ❤️ A rare cancer diagnosis can feel overwhelming, especially when there are so many unknowns. The fact that you’re actively exploring clinical trials shows so much courage and determination. In situations like this, having access to the right specialists, advanced treatment options, and supportive care can make a meaningful difference in the journey. Many patients today are exploring different medical resources globally to learn about additional possibilities and expert opinions. May I ask, have you already found a clinical trial that matches your condition, or are you still searching for more options? I’d be happy to hear more about your story and what kind of support you’re looking for. ❤️
Community Member
a month agoI am also in a non curative situation hurthle cell that metastasized from my thyroid to my lungs. I am using cryo ablation to kill it but there is no guarantee it won’t reappear but it does reset the clock for a bit. Is that something you have looked into? Is it possible ? Just hoping this gives help .
Community Member
a month agoI also have been diagnosed with an incurable carcinoma that has metastisized to my lung. Im currently trying Lenvima to see if it will prevent it from growing. Hoping for good results on September 8th. Clinical trials are very much worth the try when we've been told our disease is incurable. Go for it Norma! And let God do His Will for u. Wishing u the best. 🩷🙏💪🫶🙌
Community Member
a month agoDear Norma S, I just finished reading your text and the texts that followed and like yourselves I too was given a 1-2 yr window.. Lymph-node to lung to bone.. After radiation and immunotherapy I didn’t think I would make it six months.. I went from 165 to 120lbs no appetite and sicker than I’ve ever been.. That was in 2025… In June of last year or thereabouts I made the decision to give it ALL to Our Lord and Savior YESHUA ( more commonly known among Christians as Jesus Christ).. The One True Healer.. Threw FAITH and never ending PRAYER I’ve left my doctors scratching their heads.. NO new growth in six months plus.. I can’t emphasize enough how much prayer worked for me through all of this.. It doesn’t matter what religion you are or what your beliefs are it’s what you’re willing to accept and believe.. Every morning I get down on my knees and thank God for a new day and pray for EVERYONE here on O4M and give it ALL TO HIM.. YOU HAVE NOTHING TO LOSE AND EVERYTHING TO GAIN Norma.. NOTHING IS MORE POWERFUL THAN THE POWER OF PRAYER..🙏 May God Bless you and be with You always.. Thomas O 🙏
Community Member
25 days agoI have a rare & aggressive cancer also (adrenal cortical carcinoma). I have tumors in my adrenal bed & in my liver. My last scan they got a little bigger but I don’t have any new ones. I was on Cabozantinib & now my Dr wants to put me on mitotane but says this is the last option before any trials.
Community Member
5 days agoI'm looking for a clinical trial for Ovarian cancer any one willing to share resources
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