Community Member
9 days agoMy cancer is extremely rare and there is no known treatment or cure. It is a salivary cancer that has metastasized to my lungs and liver. At its projected growth rate I have 1-2 years. My MSK oncologist is hoping to get me into a clinical trial … not curative but to hopefully inhibit the growth of the cancer. I would love to hear others experiences with clinical trials.
Community Member
9 days agoClinical trials can offer hope when standard treatments aren't available, and many community members have found them to be meaningful experiences that provide access to promising new therapies while contributing to research that helps future patients. The medical teams running these trials typically provide very close monitoring and comprehensive care throughout the process, which many participants appreciate during their cancer journey.
Community Member
8 days agoI’m so sorry you’re going through this incredibly challenging journey. ❤️ A rare cancer diagnosis can feel overwhelming, especially when there are so many unknowns. The fact that you’re actively exploring clinical trials shows so much courage and determination. In situations like this, having access to the right specialists, advanced treatment options, and supportive care can make a meaningful difference in the journey. Many patients today are exploring different medical resources globally to learn about additional possibilities and expert opinions. May I ask, have you already found a clinical trial that matches your condition, or are you still searching for more options? I’d be happy to hear more about your story and what kind of support you’re looking for. ❤️
Community Member
5 days agoI am also in a non curative situation hurthle cell that metastasized from my thyroid to my lungs. I am using cryo ablation to kill it but there is no guarantee it won’t reappear but it does reset the clock for a bit. Is that something you have looked into? Is it possible ? Just hoping this gives help .
Community Member
a day agoI also have been diagnosed with an incurable carcinoma that has metastisized to my lung. Im currently trying Lenvima to see if it will prevent it from growing. Hoping for good results on September 8th. Clinical trials are very much worth the try when we've been told our disease is incurable. Go for it Norma! And let God do His Will for u. Wishing u the best. 🩷🙏💪🫶🙌
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