How do I manage mycosis fungoides without blood involvement?
Community Member
15 days agoI have large B cell lymphoma (ctcl) and Mycosis fungoides. Current My ctcl count is low 235 they treat only when it's 2500 to 3000. Holding study. But MY MF is very hard to deal with. NO blood involvement so that good.
Community Member
15 days agoManaging mycosis fungoides can be challenging, especially when trying to balance treatment decisions while monitoring other aspects of your condition. Many people in this community find it helpful to discuss symptom management strategies and connect with others who understand the complexities of living with T-cell lymphoma - have you found any approaches that help with your MF symptoms, or are there specific aspects you're struggling with most?
Community Member
3 days agoI have Szery with lymphoma very painful
Community Member
3 days agoPhotopheresis Morgantown WV 3 hr drive schedule depends on patient
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