Community Member
5 months agoNewly diagnosed T-cell Lymphoma NOS. I have spinal cord compression as a result of the tumor mass at T-3 through T-6. A significant compression at T-4,2.2cm where there is some effacement and signal noise. I had back pain that was progressively getting worse. Then went from walking to not walking over the course of 2 days. I was clueless about what was going on. Pretty frightening situation to be thrust into without an injury to associate your immobility with. I’ve had one round of chemotherapy and multiple treatment options are being discussed
Community Member
5 months agoFacing sudden paralysis from spinal compression is incredibly frightening and overwhelming, especially when it happens so quickly without warning. Many people in this community understand the shock of having your mobility change so rapidly, and it's completely normal to feel scared and uncertain about what comes next. The good news is that spinal compression from lymphoma often responds well to treatment, and discussing multiple treatment options with your medical team shows they're being thorough in planning your care.
Community Member
24 days agoWhat options would work. Is the nervous system a factor?
Community Member
23 days agoI had 6 rounds of B chop chemo and just had a pet scan to see if that was effective. The tumor caused a spinal cord injury. I may or may not recover from…
Community Member
13 days agoDisappointing news on my end. Trying to not retreat into a cave. The pet scan showed some remaining disease in my spinal column, R hip and femur. I was scheduled for a bone biopsy of the spinal column yesterday to determine if this was new disease or different type, etc. The procedure is done with guided CT imaging and your semi awake/ sedated. The surgeon stopped the procedure after a few minutes inside the scanner and pulled me out. They said they were unable to do the procedure or get biopsies because they were afraid the needle could prick my aorta which is very close by. The invasive tissue is inside and around my spinal column. 🤷🏻♀️ I have mixed emotions. I am SO thankful they didn’t attempt anything dangerous which could have caused further paralysis or a major bleed! On the other hand… I have an aggressive cancer that 6 rounds of chemotherapy didn’t kill off and my last treatment was 2 months ago now. Where does all this leave me? I can’t have a stem cell transplant because of the remaining cancer. I may not be able to have the bone marrow transplant either if they can’t get the bone marrow biopsy. Frustrated.
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