Community Member
2 months agoHi everyone I'm new here I was diagnosed with T-Cell lymphoma and being treated for it though infusion. I was told I had stage lllB does anyone know what that means?
Community Member
2 months agoWelcome to the community! Stage IIIB typically means the lymphoma has spread to lymph nodes on both sides of the diaphragm and that B symptoms like fever, night sweats, or weight loss are present. It's completely understandable to want clarity about staging - many community members find it helpful to write down questions before appointments and ask their care team to explain things in detail, as they know the specifics of each case best.
Community Member
2 months agoTheresa, I’m sorry to hear about your diagnosis. I was diagnosed with Metastatic Peripheral T Cell Lymphoma in early May. I don’t understand all the ins and outs of staging but I believe this suggests cancer has invaded surrounding tissue but not organs. Definitely ask your cancer team to explain. Have you started treatment, if so do you mind sharing what that entails? Teri
Community Member
2 months agoWow thanks for the info.
Community Member
2 months agoTeri, so sorry about your diagnosis but I know we are fighters and we are going to beat this!!! 💓
Community Member
a month agoTeri, My treatment was infusion every week for 5 weeks then after that once every other week. Poteligeo. I'm also taking meds .
Community Member
a month agoWanted to check in and see how you’re doing. Sending my best and hope your treatments are working. 💪💗
Community Member
a month agoI'm doing okay had treatment yesterday and it has completely drained my energy. I've been in bed for the past two days. How have you been?
Community Member
a month agoFeeling drained after treatment happens to many. It certainly has to me. I finished my chemo treatment a month ago. Had a pet scan a few days ago and am waiting on pins and needles to hear the results. I meet with the transplant team soon to see if I’m eligible for a stem cell transplant.
Community Member
16 days agoPraying for you Teri. Hope you get good news.
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