Has anyone with metastatic TNBC tried clinical trials?

Hi Stacey , sorry to heard that . I’m signing in a trial coming up due to I’m TBNC early stage . If u don’t mind how long ago was ur first cancer diagnosed?

My first time was 2021

Wow 😩 sorry

I am in the same boat as you. Second time with TNBC - currently on trodelvy with the same schedule. Let me know if you find any clinical trials, I am also interested in that info.

Stephanie A, I’m going Tuesday the 19 to GW Hospital to learn about a clinical trial the targets TNBC and its not chemo based.

I am completing my cycle 8 of xeloda and keyruda as a clinical trial combination. Please stay strong and ask a lot of questions it helps

Stacey B, If you don’t mind sharing what you find out - I would love to know more. Thanks!

Stephanie I will definitely keep you posted.

Stacey B, Did you end up doing clinical trial? How are you feeling? Still doing Trodelvy? I am on cycle 9 of Trodelvy and it seems to be working! Tumors are shrinking, ct scan couldn’t even measure some of the tumors that were there in June! Praise God! I am also exploring holistic options and therapies if you want to know more, I am happy to share! Bone scan on my ribs showed metabolic action but again no measuring of any tumor! So pleased with my results, wishing you all the best!

I am currently on XB010 a clinical trial for mTNBC. I am stage 4 also. I cannot find too many of us. How long ago were you rediagnosed?

Id like to speak to you. I have found no one with stage 4 metastatic since my diagnosis in October. Treatable but not curable. I don’t believe it.

I was just diagnosed stage 4 TNBC, a resurgence from 2021 DCIS. I just found this app. I’m waiting for the VA to approve treatment at the U of Utah since the VA can’t or won’t treat females.

Many community members have explored clinical trials for metastatic TNBC and often share their experiences here, including immunotherapy combinations, antibody-drug conjugates, and targeted therapy studies. Clinical trials can offer access to promising new treatments, and it sounds like connecting with others who've been through this process could provide valuable insights for your journey.

Hi. I am MTNBC diagnosed Dec 2024. I had Abraxane for 10 months sort of worked but really didn't. Now im on Trodelvey. My understanding is that I'm just buying time as the cancer is in my bones and organs. Im not a candidate for mastectomy or radiation I had radiation on my C6 vertebrae to shrink tumor to reduce pain, but not remove it. Is anyone else in my boat? No mastectomy, no radiation to kill tumors, Keytruda attacked my liver so I can't take any immunotherapy drugs. I feel a bit hopeless and helpless. Many bad thoughts. I've started therapy and I think its helping a bit. I just can't comprehend why the won't be more aggressive with me. I want my breasts removed but they won't do it. 2nd opinion from Mayo said I'm on standard protocol. Any one else think they aren't getting "enough" care? I'm my only real advocate and its very hard.

Chioma , I’m on cycle 5 o the same regimen