CommunitiesVulvar CancerHow do you cope with vulvar cancer diagnosis after years of chronic illness?

How do you cope with vulvar cancer diagnosis after years of chronic illness?

BG

Community Member

18 days ago

I was just diagnosed with Vulvar Cancer after battling over 40 years with LS and Crohn's. Now Im facing a partial Vulvar removal. I already had sections of bowel removed for a bowel blockage back in my 20s. I am 59 and feeling so scared. The biopsy was traumatic enough. Wish I had been under for that. Im reading others situations and feeling great empathy. Big hugs to all you warriors.

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3 comments
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CA

Community Member

18 days ago

Facing a new cancer diagnosis while managing other chronic conditions takes tremendous courage, and this community understands the unique challenges that come with navigating multiple health battles. Many here have found that connecting with others who truly understand can provide comfort during overwhelming times, whether through sharing practical tips for managing procedures or simply offering emotional support when fear feels heaviest. What aspects of this journey feel most daunting right now, and what kinds of support from this community might be most helpful?

DS

Community Member

4 days ago

I was diagnosed in November 2025 with vulvar cancer. I had surgery locally but I have a J-pouch so he didn’t get the margin he wanted. He sent me to Indianapolis to Dr Michael Callahan at St Vincent’s Hospital. He ordered a pet scan but there was a glare that prevented them to see areas in my groin so he ordered (2) MRI’s, Pelvis & Liver because something lit up on my liver on the pet scan for suspected liver cancer. A liver biopsy was done but it didn’t show anything. He said it was in a difficult area, right below my heart so the radiologist may of missed that area. We will do another liver biopsy later on as he wanted to do a more radical surgery on my vulva. He’s also removing my lymph nodes on both sides of my groin. I’m asking him if he can do a liver biopsy while I’m under. So as of today, he’ll be doing more surgery in (12) days. He did mention that he felt that I wouldn’t need any treatment after surgery but will see what the pathology report says.

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RS

Community Member

14 hours ago

Hugs!!!

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