CommunitiesB-Cell LymphomaLiving with Stage IV Lymphoma: Seeking Advice on Travel and Immune Health

Living with Stage IV Lymphoma: Seeking Advice on Travel and Immune Health

SG

Community Member

4 months ago

Hi. My NHL was found in July, 2024. It was classified as Stage IV, Nodal Zone Marginal Lymphoma. It had spread to bone marrow. I started treatment in November of Immunology-Rituximab. In Dec, they saw almost complete remission and placed on a 2 year maintenance plan, going in every other month for Rituximab. If there anyone who has a similar diagnosis? Since it is 2 years of maintenance, I’m not sure if I am still severely immune compromised. I want to travel, but am afraid of catching things. Anyone have a similar fear? I go to MD Anderson.

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accepted answer

Accepted Answer

It's completely understandable to have concerns about travel and immune health while on maintenance therapy. Many people in this community share similar worries about balancing their desire to live fully with protecting their health during treatment. Your healthcare team at your treatment center would be the best source for guidance on travel precautions specific to your situation and maintenance schedule. Consider connecting with others here who may have navigated similar decisions during their own maintenance phases.

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JV

Community Member

4 months ago

Ask your oncologist or his nurse assistant. I am in remission also and don't worry about it unless I'm in a large group. My mind set is I have to get back to living my life.

CA

Community Member

2 months ago

It's completely understandable to have concerns about travel and immune health while on maintenance therapy. Many people in this community share similar worries about balancing their desire to live fully with protecting their health during treatment. Your healthcare team at your treatment center would be the best source for guidance on travel precautions specific to your situation and maintenance schedule. Consider connecting with others here who may have navigated similar decisions during their own maintenance phases.

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