Community Member
a month agoHas anyone had hypaberrick oxygen? I had prostate removal May/24, radiation Jan/Feb 2025 and orgovyx June/24 thru Jul/26. Urinated blood a couple times, then totally unable to urinate. Admitted into hospital with scope procedure after 2 days of bladder irrigation. Diagnosis was radiation cystitis 18 months after radiation, thankfully not bladder cancer. Still in hospital with catheter, hopefully coming off today, and hopfully going home today. Dr. is subscribing hypaberrick oxygen. Has anyone had this? It's supposed to rebuild bladder/colon tissue after radition. Was it helpful, what else does it cause, good or bad?
Accepted Answer
Hyperbaric oxygen therapy is sometimes recommended for radiation cystitis, as it can help promote healing by increasing oxygen levels in damaged tissues. While experiences vary among patients, many community members have found it helpful for managing radiation-related complications - hopefully others here can share their experiences with the treatment and recovery process.
3+ patients found this helpful
Community Member
a month agoDear Lee L — Yes, concerning hyperbaric oxygen therapy (HBOT)! I’ve experienced 29 complications of PCa treatment in the 27 months since conclusion of EBRT and ADT. None of my “care” team nor the 7 specialists I’ve seen have done, prescribed, or suggested anything that cured or alleviated a single one of these ridiculously named “side” effects. And none of these supposed medical experts has ever mentioned HBOT. However … just two weeks ago the AI program ChatGPT did in fact suggest that I look into HBOT. All I can say at the moment is that I’ve read everything I can find about it online and it seems promising. So I suggest that you keep inquiring, as will I, and we should stay in touch via O4M.
Community Member
a month agoHyperbaric oxygen therapy is sometimes recommended for radiation cystitis, as it can help promote healing by increasing oxygen levels in damaged tissues. While experiences vary among patients, many community members have found it helpful for managing radiation-related complications - hopefully others here can share their experiences with the treatment and recovery process.
Community Member
a month agoUpdate. Scheduled consultation with hypaberrick facility with a planned 40 sessions of oxygen treatment for 1.5 hour sessions, for my diagnosis. I have medicare a/b with supplemental G. All should be fully paid for by Medicare.
Community Member
a month agoDave S. Yes, I too use chatgpt extensively, especially this past weekend. I find it very helpful. It's unfortunate that no one in your care team told you about this a long time ago. I was fortunate the surgeon recommended it as soon as he saw me on my first issue. Hopefully hypaberrick will negate any future episodes.
Community Member
a month agoDear Lee L — How exciting! Best wishes. I’ve requested a referral to an HBOT Center from my doc; will report any progress right here on O4M.
Community Member
a month agoThanks Dave. Best wishes for u too. I don't want to experience this past weekenda again, so anything we can do to prevent is a step forward. Good luck and hope u get your referral quick.
Community Member
a month agoI have had two courses of hyperbaric oxygen two years apart for radiation cystitis. The first course of 40 treatments gave me a 2 year remission. The second course this summer was only 20 treatments because the cystitis was not as bad. Though it is tiresome it is effective without side effects. Go for it!
Community Member
a month agoBernard G: thank you for the encouragement. I was hoping it would buy more time. I don't understand why the radiation damage doesn't stop after it's done. Can you give more info on your journey? Was your prostate removed? How many radiation treatments? How long ago for each? How many times did you suffer with cystitis? And, did they require surgery to cautirize the bleeding areas?
Community Member
24 days agoLee: I had brachytherapy but it wasn’t successful. Cauterization was necessary only once when the radiation cystitis was first discovered.
Community Member
24 days agoThank you Bernard. Sorry to hear that didn't work, but surprised it caused cystitis. What was your second episode, continuous bleeding? I hope to never need the emergency surgery I had to stop the bleeding and clotting again. The irrigation they use to try to stop the bleeding is awful, especially when the nurse on duty doesn't change the irrigation bag before it runs out, then it clots up and stops the catheter draining and causes a backup and pressure.
Community Member
21 days ago. (Ł
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